Blood Cancer UK Online Community Forum Forum

Hi everyone, I have been reading forum posts in the background, trying to build some reassurance that all will be fine. I was diagnosed initially with Myelodysplastic syndrome ('MDS') 18% blasts. Admitted to NUH to beg…

Hello. I hope no one minds me posting on this forum as I do not have lymphoma however a very good friend of mine has recently been diagnosed with stage 3 NH follicular lymphoma. He is due to start chemotherapy shortly…

Hello. I hope no one minds me posting on this forum as I do not have lymphoma however a very good friend of mine has recently been diagnosed with stage 3 NH follicular lymphoma. He is due to start chemotherapy shortly…

I am 66 just about to retire and I suddenly got a diagnosis of Myelofibrosis from a random blood test and then confirmed by a marrow biopsy. I am very fit and lived a very healthy lifestyle so of course was shocked and …

I am 66 just about to retire and I suddenly got a diagnosis of Myelofibrosis from a random blood test and then confirmed by a marrow biopsy. I am very fit and lived a very healthy lifestyle so of course was shocked and …

Hi everyone. My mum is 81 and has Acute myeloid leukaemia ('AML') (diagnosed in July). She has refused to have any chemo. She’s currently well and still independent. Eating and drinking fine. Having weekly FBCs and so f…

Hi everyone. My mum is 81 and has Acute myeloid leukaemia ('AML') (diagnosed in July). She has refused to have any chemo. She’s currently well and still independent. Eating and drinking fine. Having weekly FBCs and so f…

Hi I have low risk single lineage Myelodysplastic syndrome ('MDS'). I am severely neutropenic . I also have psoriatic arthritis which is apparently linked. I would be very interested in hearing from anyone else with both…

Hi I have low risk single lineage Myelodysplastic syndrome ('MDS'). I am severely neutropenic . I also have psoriatic arthritis which is apparently linked. I would be very interested in hearing from anyone else with both…

I have been pretty quiet here, my Essential Thrombocythemia has been well controlled and blood levels have been stable. But I have recently been challenged by development of bursitis in my left hip. This got started afte…

I have been pretty quiet here, my Essential Thrombocythemia has been well controlled and blood levels have been stable. But I have recently been challenged by development of bursitis in my left hip. This got started afte…

Hello After thinking I had at least stage 3 bladder cancer I have been told that I have Malt lymphoma in my bladder instead. This is going to have a much better outcome than having stage 3 bladder cancer. I’m waiting …