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Blood Cancer UK Online Community Forum

forum.bloodcancer.org.uk

Discourse forum in English. 12 sections tracked: Caring for & supporting a loved one, Clinical Trials, COVID-19 (Coronavirus), Going through treatment, Life after treatment, Living with and after blood cancer, Losing someone to blood cancer, Recent diagnosis, Updates and News from Blood Cancer UK, Active Monitoring (Watch and Wait), If treatment isn't working and Worried you might have a blood cancer?.

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Latest discussions

Collected every 4 hours from the forum's public feed. Only the title, the link and the beginning of the message are reproduced; every link points back to the source.

Blood Cancer Awareness Month- Any Plans?

Hi Forum Friends. Hope you are all having a good start to the week. Can’t quite believe it’s 1st of September. As I’m sure most will know September is Blood Cancer Awareness Month. In support of this I’ll be posting …

Clothing for hospital appointment

This is a silly question , but i have an appointment soon and wonder which is best. When you ladies have a hospital appointment where the nurse will have to check lymph nodes in the groin area, do you wear trousers that…

Fatigue with Hydrea

Hello , my name is Shannon and I was diagnosed with Essential Thrombocythaemia ('ET') Jak 2 in 2021 and have just started hydrea 500 milligrams daily 5 months ago when I turned 60 Hello , I was diagnosed with Essential…

Enlarged spleen triggers treatment

So….my suspicions following my post in April were correct as after self diagnosing an enlarged spleen this has been confirmed and after 4 years of active monitoring I have commenced treatment. Prescribed Zanubrutinib and…

Considering a stem cell transplant with a 9/12 donor

Hi all, I am a 43 year old male. I was diagnosed with Chronic Myeloid Leukaemia (Chronic myeloid leukaemia ('CML')) in March 2025. I have since tried Dasatinib and Bosutinib, both of which did not have the desired effe…

TLGL and Severe Neutropenia...and activities

I’ve started my TLGL journey a few weeks ago, and have just completed my 5th week of daily chemo and G-CSF injections. Before my diagnose i was pretty active at my allotment and (touring) cycling. Mr web world tells me…

TLGL and Severe Neutropenia...and activities

I’ve started my TLGL journey a few weeks ago, and have just completed my 5th week of daily chemo and G-CSF injections. Before my diagnose i was pretty active at my allotment and (touring) cycling. Mr web world tells me…

344 discussions collected since 1 September 2026. Track this forum by keyword →