Blood Cancer UK Online Community Forum

Hi Forum Friends. Hope you are all having a good start to the week. Can’t quite believe it’s 1st of September. As I’m sure most will know September is Blood Cancer Awareness Month. In support of this I’ll be posting …

This is a silly question , but i have an appointment soon and wonder which is best. When you ladies have a hospital appointment where the nurse will have to check lymph nodes in the groin area, do you wear trousers that…

Blood Cancer Awareness Month starts today, and this year our campaign is called ‘Here for This’. It’s about the moments that matter: the milestones, memories and everyday experiences that can mean so much more when bl…

Blood Cancer Awareness Month starts today, and this year our campaign is called ‘Here for This’. It’s about the moments that matter: the milestones, memories and everyday experiences that can mean so much more when bl…

Hello , my name is Shannon and I was diagnosed with Essential Thrombocythaemia ('ET') Jak 2 in 2021 and have just started hydrea 500 milligrams daily 5 months ago when I turned 60 Hello , I was diagnosed with Essential…

So….my suspicions following my post in April were correct as after self diagnosing an enlarged spleen this has been confirmed and after 4 years of active monitoring I have commenced treatment. Prescribed Zanubrutinib and…

I have been diagnosed with my Chronic lymphocytic leukaemia ('CLL') at 50 very worried and can’t eat or sleep because under 55 you have umuted Chronic lymphocytic leukaemia ('CLL') which is more aggressive I have childre…

I have been diagnosed with my Chronic lymphocytic leukaemia ('CLL') at 50 very worried and can’t eat or sleep because under 55 you have umuted Chronic lymphocytic leukaemia ('CLL') which is more aggressive I have childre…

Hi all, I am a 43 year old male. I was diagnosed with Chronic Myeloid Leukaemia (Chronic myeloid leukaemia ('CML')) in March 2025. I have since tried Dasatinib and Bosutinib, both of which did not have the desired effe…

I’ve started my TLGL journey a few weeks ago, and have just completed my 5th week of daily chemo and G-CSF injections. Before my diagnose i was pretty active at my allotment and (touring) cycling. Mr web world tells me…

I’ve started my TLGL journey a few weeks ago, and have just completed my 5th week of daily chemo and G-CSF injections. Before my diagnose i was pretty active at my allotment and (touring) cycling. Mr web world tells me…

My Dad (78y) has Chronic myelomonocytic leukaemia ('CMML') which has transformed into Acute myeloid leukaemia ('AML'). He had a really good 9 months on Gilteritanib with few side effects and great control of his leukaemi…