Thank you so much for providing your experience and opinion.
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I was diagnosed at 17, and have had T1 for over 48 years, and I assume my suggestions wouldn’t naturally fit your needs, so I went for AI (Gemini): Next Steps After Medical Diagnosis Once the diagnosis is confirmed and immediate medical stabilization has begun, focus on establishing the daily routine: Connect with a Pediatric Diabetes Team: Work directly with a pediatric endocrinologist, a Certified Diabetes Care and Education Specialist (CDCES), and a pediatric registered dietitian. Learn the Four Daily Fundamentals: Blood glucose monitoring: Learn to use a standard glucometer and discuss getting a Continuous Glucose Monitor (CGM) like Dexcom or Freestyle Libre. Insulin administration: Master both long-acting (basal) and rapid-acting (bolus for meals/corrections) insulin delivery via pens or syringes. If they are on a pump, understand the software, bolusing strategies, and changing the pump Carbohydrate counting: Learn how to read nutrition labels and calculate insulin-to-carb ratios. Treating hypoglycemia (low blood sugar): Keep fast-acting carbohydrates (glucose tabs, juice boxes) on hand at all times and ensure a glucagon emergency kit (e.g., nasal powder or auto-injector) is prescribed and understood. Setting Up School & Support Systems Notify the school: Contact the school nurse and administration to establish a Section 504 Plan and a Diabetes Medical Management Plan (DMMP) covering blood checks, snack access, insulin administration, and gym accommodations. Establish a
@mschmidt825 Welcome Mandy, to Breakthrough T1D Community Forum! I am guessing right now that diabetes being so new to you that you don’t know where to begin, so, take your time and don’t be afraid to ask any question - nothing is too trivial when it comes to diabetes. Chris and Dorie have offered some very good and useful thoughts and links, and I’ll just add to those is a suggestion not to be afraid to click the “ Resources ” link at the top right to access a wonderful Diabetes Library - unfortunately the “ Find a Chapter ” link isn’t operating correctly today. I’ll also suggest that both you, your son, and extended family and friends try [not always easy] to maintain a positive attitude and avoid the “I / you can’t *** because of diabetes”. There isn’t anything he will not be able to accomplish just because of his diabetes; I’ve been using insulin to keep me living for 70 years and accomplished and been productive the whole time. Mandy, be his guide and don’t fear letting [within reason] him run free and enjoy life.
Hi Mandy and welcome to the Forum! I’ve been on insulin for over 60 years and am doing just fine - well, any issues I’m having at this point are due to age rather than diabetes (arthritis, blood pressure - which is under control) and the like. A few suggestions I would make: When searching for an endocrinologist be sure to specify one who knows how to handheld Type1 specifically. Many if not most work with Type2 so it’s important to make the distinction. You’ll hear a lot about pumps and they’re great but take your time to decide. I’ve been using one for about 30 years now and love it but not everybody wants one. On the other hand there are people who can’t handle lows without. It will take a little time for things to “settle” with your son but hopefully like most of us using one is an option to consider. Don’t feel pressured if a doctor starts to push one. I highly recommend you check out the book Think Like a Pancreas by Gary Scheiner. He has Type1 diabetes and works in the field so has a unique personal perspective that is particularly helpful. Sugar Surfing is another popular one. There’s a high learning curve but hopefully you will find these a good supplement to what you will be learning from your care team. There are a number of apps you can use for tracking: SugarMate, MySugr, Glooko and MyNetDiary are all freev to make just a few. Try them out to see which you like the best. Sometimes I see people post here or elsewhere online in the middle of the night with an emerg
Hi Mandy. Hugs to you and your family. So many hugs. Was the doc able to diagnose your child before an ER visit for DKA happened? Request Care Packs - Breakthrough T1D Find the local BT1D Chapter near you and check for meetups Local Type 1 Diabetes Support - Breakthrough T1D Are you within a few hours of the San Francisco bay area? This Saturday 2026 Community Summit in San Ramon | Breakthrough T1D Northern California A parent wrote the blog https://www.worstgameever.org/ comparing diabetes to a video game. The entries are super short and fun. He made a diabetes education game for kids https://www.playlevelone.com/ Diabetes is expensive. Next time health insurance open enrollment happens check for better plans. Check the next drug plan formulary every year. Feel free to make as many posts about whatever you need to talk about on the forum. The forum search is really good. If you see something from another parent you want to talk to just make a post and put an @ in front of their username, like this @mschmidt825 , and the forum will send them an email.
Hey all! My 9 year old was diagnosed with T1D on 8/19/26. I feel like it is so much to process, a lot of ups and downs, and any advice, tips, greatly appreciate! Thank you!! 5 posts - 5 participants Read full topic
Hey all! My 9 year old was diagnosed with T1D on 8/19/26. I feel like it is so much to process, a lot of ups and downs, and any advice, tips, greatly appreciate! Thank you!!
Oh anytime @mkenni And welcome to Breakthrough T1D. I wrote up all my first impressions a while ago here. In case you want to see the parts Tandem Mobi first impressions
Thank you so much for the information. The phone issue seems to not be an issue now after reviewing your comments. Now I need to decide if a 185 reservoir will be adequate in the long run. Thank you so much for your help.
Tandem said this year but they still haven’t gotten FDA approval
Does the Mobi also send out alarms or alerts? Or just the phone app? It has a light buzzer and beeper in the pump for alarms, alerts, warnings Will charging the mobi for 10/15 minutes every day suffice? Yes If I lose my phone, can I easily put the app on another phone quickly or do I need another phone already set up with the app? Take a picture of the pump serial number. Setting up on a compatible phone is pretty quick. Does the quick bolus only do one unit per insulin per press? Or can it be programmed to 1.5 units, for example? Programmable. But not perfect. Your choices are 0.5,1,2, and 5. Mine is set for 2 units Can you set your Mobi to give no insulin for 15, 30, 45, 60 minutes like you can with the x2-slim? Yes. Temp rates can extend from 1 minute to 72 hours adjustable in minutes. If I lose my phone, can I continue to do quick boluses until I get the new phone set up? Yes Tubeless Mobi or Tubi? When is it coming out? I don’t know. You know, if you love the local control panel you can always get another x2 The mobi cartridge is 185 units (advertised as 200) it does run below zero though and just says “Low”.
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