Forum Blood Cancer UK Online Community Forum

My name is Lawrence. I am 69 and I was thinking I was fit for a 69 year old. Playing Badminton twice weekly, joined Aqua classes few weeks ago with intention to shed some weight. For few months now, my wife was complaini…

I am wondering about ‘fatigue’ and other people’s experience of it. I was diagnosed with ‘complex’ Myelodysplastic syndrome ('MDS')/MNP almost a year ago now and, after a number of months of very regular blood tests and…

Hi fellow forum friends. Hope that you all have had a good start to the week. Yesterday, I was down for a Haematology Appointment in Inverness. I’ve been receiving Adult Disability Payment (Scottish Equivalent of PIP)…

Hello Dear Blood Cancer Friends Am hoping all is as well as can be for you, and that you’re enjoying the cooler temps (if in the UK). I might have mentioned before that I am a real winter girl, I do love the cosy! Howe…

Next time you visit the forum, you’ll be asked two short questions about your experience of blood cancer. Your answers add a small icon and title next to your name, so it’s easier to spot when someone in a conversation s…

Hi there My mum is currently in hospital she went in o Friday and I’ve been with her everyday but I’ve had to take a step back and not visit as I have cold symptoms. I’m on day 3 and I hate it. I’m her primary carer and…

I am 5 years in remission from Acute Promyelocytic Leukaemia. Is it wise to be careful about only travelling to countries that have good haematology care because Acute Promyelocytic Leukemia is aggressive and if it com…

Hi all, I have been put on hydroxycarbonide after having reactions to two other medications. I am finding that my hair has become really thin and comes quite a lot has anyone else had this experience and have any advice. …

Hi I’m Connie 29 years old and was diagnosed with Essential Thrombocythaemia ('ET') (JAK2) in January 2020! I’m currently on daily aspirin medication to help prevent blood clots. I’m just looking for anymore information…

I have been taking Hydroxycarbomide for 6 weeks now for Essential Thrombocythaemia ('ET') and often seem to have a mild sore throat, is that something others have experienced? I have also had a small mucocoel come up on …

I was diagnosed with Myeloproliferative Disorder (Jak2 mutation of 15%) two weeks ago. I am currently trying to navigate this diagnosis and what it means for me moving forward. I have always been fit and healthy and th…

I was diagnosed with Myeloproliferative Disorder (Jak2 mutation of 15%) two weeks ago. I am currently trying to navigate this diagnosis and what it means for me moving forward. I have always been fit and healthy and th…