Has anyone with Monoclonal gammopathy of unknown significance ('MGUS') encountered bruising I’ve kept a record ive had 83 bruises mostly back of hands but now some appearing on neck and face I’ve kept note since April an…
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Hi, I was diagnosed with Essential Thrombocythaemia ('ET') in sept 2025 and I have now been diagnosed with rheumatoid arthritis. I was just wondering if there is any connection. I feel overwhelmed with tiredness and ac…
Hi, I was diagnosed with Essential Thrombocythaemia ('ET') in sept 2025 and I have now been diagnosed with rheumatoid arthritis. I was just wondering if there is any connection. I feel overwhelmed with tiredness and ac…
Hi, I’m taking IRD (Ixazomib, Revlamid (Lenolidamide) & Dexamethesone) as third line treatment for myeloma. It is being very effective but the side-effects seem to be building up. I wondered if anyone else is on this tre…
Hi, I’m taking IRD (Ixazomib, Revlamid (Lenolidamide) & Dexamethesone) as third line treatment for myeloma. It is being very effective but the side-effects seem to be building up. I wondered if anyone else is on this tre…
worried about an accumulation of symptoms, these are, bruising easily but for no apparent reason on the arms, legs, hands and feet, extreme tiredness, even when haven’t really done anything to exert myself, bloating, pai…
worried about an accumulation of symptoms, these are, bruising easily but for no apparent reason on the arms, legs, hands and feet, extreme tiredness, even when haven’t really done anything to exert myself, bloating, pai…
Hi all. I wondered if anyone can help. I’m Essential Thrombocythaemia ('ET') CALR type 2. Platelets 630. Diagnosed very recently. I also have ME. The last week I have experienced a tight feeling chest and like I ca…
Welcome to our clinical trials space This is a space for our blood cancer community to talk about clinical trials, to share your own experiences, learn from others, or simply ask a question. However you’re using it, you’…
Welcome to our clinical trials space This forum category is a space for our blood cancer community to talk about clinical trials, to share your own experiences, learn from others, or simply ask a question. However you’re…
The Department of Health and Social Care (DHSC) is running an independent review of stem cell donation and transplantation in the UK, looking at current challenges, opportunities and what the future should look like for …
The Department of Health and Social Care (DHSC) is running an independent review of stem cell donation and transplantation in the UK, looking at current challenges, opportunities and what the future should look like for …
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